Long Term Health

CQC launches second annual Invisible Conditions campaign

CQC launches second annual Invisible Conditions campaign

About the #InvisibleConditions campaign

Nearly one in three people in England have a long term condition, and many of these conditions are ‘invisible’ or not easily noticeable to someone else. In our State of Care 2015/2016 report, we found that people with long term conditions were less likely to report feeling involved in their care.

CQC want to educate patients about the standards of care they have a right to expect and to let them know they can feedback to CQC about their care. In order to reach members of the public, we will be launching a multi-channel public engagement campaign on Monday, 14 November.
During the week long campaign, we will spend each day looking at one invisible long term condition:

Monday – Heart disease
Tuesday – Osteoporosis
Wednesday – COPD and other lung conditions
Thursday – Inflammatory Bowel Disease (IBD)
Friday – Mental health conditions

What We Are Asking From You
We’re asking for a commitment to help encourage more people with long term conditions to feedback about their care experiences. During our launch week, 14 November – 18 November, we’re asking you to support our campaign on your social media channels:

  •  Campaign hashtag: #InvisibleConditions
  • CQC Twitter account: @CareQualityComm

You can find more information on our webpage at: www.cqc.org.uk/invisibleconditions
CQC have partnered with a national stakeholder that is an expert in each of the conditions we will be featuring during our campaign. If you would like to share information on where the public should go to find out more about each featured condition, please see the links below:
Monday – Heart Disease – British Heart Foundation

Tuesday – Osteoporosis – National Osteoporosis Society
• www.nos.org.uk • Free Helpline – 0808 800 0035
Wednesday – COPD – British Lung Foundation

• www.blf.org.uk • COPD Patient Passport – https://passport.blf.org.uk/
• Breath Test – https://breathtest.blf.org.uk/
Thursday – Inflammatory Bowel Disease (IBD) – Crohn’s & Colitis UK
• www.crohnsandcolitis.org.uk
Friday – Mental Health – Mind
• www.mind.org.uk

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New ‘One Stop Shop’ For Disabled People

New ‘One Stop Shop’ For Disabled People

Possability People are offering a new service. We will be running a ‘one stop shop’ Information & Advice service for disabled people, people with long term conditions and carers in order to improve independent living, self-management and resilience.

We can provide support over the phone Monday to Friday 10 – 4pm (01424 234 460) via email; esussexadvice@possabilitypeople.org.uk and if appropriate face to face advice sessions as and when required. These will be held at our office in Hastings Voluntary Action.

This new service covers the whole of East Sussex.

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Update – managing a long term health condition

Update – managing a long term health condition

Nearly 700 people have shared their experiences of managing a long-term health or physical condition. We are now working on the recommendations that will form the next stage of this project.

The project was developed by the East Sussex Better Together partners (East Sussex County Council and the Clinical Commissioning Groups for Eastbourne, Hailsham & Seaford, and Hastings & Rother) and High Weald Lewes Havens Clinical Commissioning Group.

What we did

We wanted to hear from people about their experiences of managing a long-term health condition, such as diabetes, stroke, heart failure and respiratory conditions, or any kind of physical condition that has an impact on how they live their daily life.

There were two parts to the work:

  • A survey of people with long term conditions that took place in January and February 2016.
  • Six focus groups that were held in May 2016 across the county.


The survey: Over 665 people completed the survey. Respondents have a wide range of long-term conditions and around three quarters of you have more than one long-term condition.

The survey asked about: Your health; support with your condition; and managing your condition.

The focus groups: 24 people attended the focus groups, including five carers.

The common themes across the focus groups were:

  • How you feel
  • How you are treated
  • Diagnosis
  • Information and advice
  • Money
  • Access
  • Community access
  • Specialist services

Please visit our website to download the results summary: https://consultation.eastsussex.gov.uk/adult-social-care/longtermconditions

What happens next?

What people told us across the focus groups and survey will help us to plan services that empower people to manage their long-term conditions. More information on the recommendations and next steps will be published on the East Sussex Better Together website later this year.

An easy way to keep up with developments is to register for our monthly e-newsletter. You can do this at our website (www.eastsussex.gov.uk/esbt) or by emailing esbt@eastsussex.gov.uk

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