Update – managing a long term health condition

Update – managing a long term health condition

Nearly 700 people have shared their experiences of managing a long-term health or physical condition. We are now working on the recommendations that will form the next stage of this project.

The project was developed by the East Sussex Better Together partners (East Sussex County Council and the Clinical Commissioning Groups for Eastbourne, Hailsham & Seaford, and Hastings & Rother) and High Weald Lewes Havens Clinical Commissioning Group.

What we did

We wanted to hear from people about their experiences of managing a long-term health condition, such as diabetes, stroke, heart failure and respiratory conditions, or any kind of physical condition that has an impact on how they live their daily life.

There were two parts to the work:

  • A survey of people with long term conditions that took place in January and February 2016.
  • Six focus groups that were held in May 2016 across the county.


The survey: Over 665 people completed the survey. Respondents have a wide range of long-term conditions and around three quarters of you have more than one long-term condition.

The survey asked about: Your health; support with your condition; and managing your condition.

The focus groups: 24 people attended the focus groups, including five carers.

The common themes across the focus groups were:

  • How you feel
  • How you are treated
  • Diagnosis
  • Information and advice
  • Money
  • Access
  • Community access
  • Specialist services

Please visit our website to download the results summary:

What happens next?

What people told us across the focus groups and survey will help us to plan services that empower people to manage their long-term conditions. More information on the recommendations and next steps will be published on the East Sussex Better Together website later this year.

An easy way to keep up with developments is to register for our monthly e-newsletter. You can do this at our website ( or by emailing

Share this page
Posted by site admin in Uncategorised